Comments on: How Can I Find A Doctor That Will Treat My Son’s Condition Of Radial-ulnar Synostosis?

By: Christina

Christina — Wed, 10 Feb 2010 13:26:23 +0000

Hi, I work for Shriners Hospitals for Children. I was scanning my Google Alerts and saw your posting looking for help (since someone suggested Shriners). We accept patients up to the age of 18 and yes, one of our specialties is pediatric orthopaedics. I would recommend you call our patient referral hotline (800) 237-5055 or check out our website: http://www.shrinershq.org/Admission. They can put you in touch with the hospital closest to you that may be able to help. The best part is there is no charge for any of our services…and if you are not near a hospital, many times Shriners in your area may be able to help you with transportation. Good luck!

By: Nick C

Nick C — Wed, 10 Feb 2010 01:06:40 +0000

a quick review through literature tells me surgery is not very successful, and physical therapy may be the best bet. (even if you do opt for surgery, physical therapy is still a must!) just like if a body builder stops doing exercises he’ll lose his muscle tone and definition, somebody with a problem like this should take special care to regularly exercise the problem areas. here’s some info:http://www.emedicine.com/orthoped/topic2…
i’d say, if you want to take the extra effort in searching for somebody who’ll do something more, look for a orthopedic research hospital

By: J

Wed, 10 Feb 2010 00:11:39 +0000

I have a basic knowledge of synostosis, but you probably have more. We haven’t learned about that yet, but the doctor sounds like he is try to avoid unnecessary surgery, since current techniques are ineffective.
I agree with physical therapy, I am sorry I cannot help you.

By: Susan M

Susan M — Tue, 09 Feb 2010 21:41:21 +0000

I don’t know what to suggest other than that you should call every doctor and ask them to look at his x-rays or whatever you afford, until you find a good doctor, with references, who can help you.
I don’t know if this may help now that he is the age he is, but in India there are physical therapist type doctors who have use traction type therapies for amazing results. I don’t know quite how you find one here, but you could try contacting Ayurvedic practitioners.http://www.emedicine.com/orthoped/topic2…
The above article mentions many doctors who specialize in this problem. Why don’t you try looking them up? Some of these doctors can be helpful in assuring you son one way or the other about his condition and its potential for treatment.
What about the Shriner’s Hospitals? I think they do orthopedic work.