My 17-year old son was born with Radial-Ulnar Synostosis. It is present in his left arm and he has extremely minimal rotation of his hand and wrist. This has limited him in performing daily tasks without help and also with lifting heavy objects. He has been teased about it all his life. There was no pain present at a young age, but when he started maturing pain started increasing. I took him to see an orthopaedic surgeon when he was 15 years of age. The doctor told him lies and that my son would have to just deal with it for the rest of his life. After the incident of consulting this doctor, he was sent to physical therapy to gain strength in his left arm. He participated in this for several months until there was similar strength compared to the right arm.He would love to have the surgery done. For Christmas this year he has asked for treatment for his arm. I wish there was a doctor that would help make this happen. If anyone could help that would be a great thing.
#1 by Charlie on February 11, 2010 - 6:47 pm
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I did some reading on this and it seems there a re different opinions about sugery .You definetly need to consult a different orthopedic surgeon. If you have medical insurance, check with your insurance company about finding an orthopedic surgeon who deals with this type of problem. You could also call the county medical society to see if they can recommend a specialist. If you live in or near a large city or large universty hospital, they may be able to tell you of a doc who handles these types of cases. You can also do a web search for “Shriners hospitals” and find the nearest one to you. They speciaize in orthopedic problems..you could call for info. You need to make a lot of calls, be persistent, get 2 or 3 more consults. Maybe someone with experience with this will answer you. If not, just get busy researching this for yourself. Not everyone with this condition has surgery for it, but you need to see if it is practical for your son. Good Luck.
#2 by Celina on February 11, 2010 - 11:28 pm
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I watch the Research Channel on Dish Network and they feature orthopedic and neurological doctors from Washington University Medical Center. If you have dish network it is channel 9400; they have Orthopedic grand rounds and Neurological grand rounds as regular “shows”. I recommend these doctors, and know that these hospitals are a good place to look because I myself have an interest of attending medical school and I’m looking for what hospitals I would want to do a residency at. These doctors are highly specialized and perform surgeries that other, not as highly trained, doctors could or would not normally perform. Here is a link to their websites…just click and go. One of the sites has contact info. I hope this helps you and son, especially.http://www.orthop.washington.edu/uw/tabI…http://www.uwmedicine.org/PatientCare/Me…http://www.uwmedicine.org/PatientCare/Me…http://www.uwmedicine.org/PatientCare/Me…